Monitoring Symptoms

Monitoring your Symptoms

Symptoms for those with ME/CFS vary from one individual to another. For this reason the ME Diary have included the most commonly experienced symptoms.

Exhaustion (mandatory)

Post Exertional Neuroimmune Exhaustion (PENE) (mandatory)

Muscle Weakness

Muscle Pain

Joint Pain

Sleep Problems

Mobility Problems

Cognitive Problems

Simply press the edit button within the Monitored Symptoms Section at the start of each diary cycle and select the ticked box for the symptoms you want to monitor.

IOT recommend you choose only the most prominent symptoms to monitor for each new diary cycle. The reasons for this advice includes charts will become very confusing when many symptoms are added. Focusing on core symptoms will increase your chances and your medical/health practitioners’ chances of finding suitable treatments. Rather than being overwhelmed by multiple symptoms you can concentrate on two to four symptoms each diary cycle to improve your chances of treatment and recovery.


Exhaustion is defined as a state of extreme physical or mental tiredness or collapse. Exhaustion is a significant and disabling symptom experienced by those with ME/CFS, which interferes with many aspects of daily life. Exhaustion experienced by those suffering from ME/CFS is often constant and deliberating. This primary symptom will often become worse after activity, viral infection, exasperation of allergies or untreated gut problems. Recorded daily Exhaustion levels are used in conjunction with Activity to calculate a working Baseline.

Post-Exertional Neuroimmune Exhaustion (PENE)

Post-Exertional Neuroimmune Exhaustion (PENE) is not just a severe increase in Exhaustion but an increase in a number of ME/CFS related symptoms. For example an increase flu like symptoms, in joint or muscle pain, difficulty concentrating or other cognitive problems, sleeping many more hours than usual or an increase in insomnia.

Record your Symptom Levels

To record your symptom levels just move the slider to the appropriate level for that day.

Zero (0) equals No Problems with this symptom and ten (10) equals Severe Problems. You may want to complete or review your symptom scores at the end of the day to record the best average score.

Add Personalised Symptoms

You can also add your own personalised symptoms to the diary. These can be easily incorporated in the Monitored Symptoms Section. Access this function by selecting edit and use the phone menu button to add additional symptoms.

Please see suggested symptoms below, taken from the International Consensus Criteria.

Mobility Problems



Post-Exertional Neuroimmune Exhaustion (PENE)
Muscle Weakness
Orthostatic intolerance
Cannot tolerate upright position
Heart Pain
Respiratory Problems
Muscle Pain
Joint Pain
Widespread Pain
Radiating Pain
Sensitive to foods
Sensitive to medications
Sensitive to chemicals
Sensitive to odour
Sensitive to light/noise
Sensitive to touch/vibration
Sensitive to taste

Gut Problems

Sleep Problems

Neuro-Immune Problems

Abdominal pain
Irritable bowel syndrome
Prolonged Sleep
Frequent Awakening
Vivid dreams/nightmares
Un-refreshed Sleep
Post-Exertional Neuroimmune Exhaustion (PENE)
Flu-like symptoms Large/tender Lymph nodes
Sore throat
Viral infections
Cognitive Problems
Poor Memory
Problems focusing eyes
Thermostatic instability
Intolerance of temperatures